Sunday, April 2, 2017

Fear Itself

Every once in awhile, if things feel totally out of my control, in certain contexts, I experience a bit of fear.  Odd physical manifestations can do that, as well as governmental presence, whether they are there to help or punish.  Governmental entities and practices probably generate more fear than most other things in life.  Seriously.

A friend of mine was on the streets for well over a decade.  He is intelligent, and everyone likes him.   A Viet Nam vet.   But that is not actually what landed him on the street.  He had a rather creative wife who managed to mangle finances and else prior to divorce.  Then there came tax issues.

Somehow my friend ended up in a catch 22 sort of thing.  If he earned anything on the books, the IRS and his wife took it all, except less than a hundred a month, or something close.  Eventually, he said screw it.  He went to the black market economy trading in black market commodities which left him more spending money.

He finally became a drunk and druggie, eventually becoming a hard core homeless type.  Vestiges of what war does to people, especially the crazy ass way they conducted that war, certainly affected him.  But the real point is that without a workable way to appease that criminal government agency, this guy could no longer cope.

As big a jerk as my father may have seemed, the IRS really did a number on him in his final years.  I find it next to criminal that somehow, maybe 8 years after he died, they decided they'd raped him for close to $100K in excess of what even they thought they were due.  So, they refunded to his re-married widow.  Some reached my brother and I through a technicality.  Nothing she could do about it  

I think it is sick that they reduced him to a miserable existence and then refund the excess after he died.  He was no angel and lacked any sort of tact or diplomatic savvy, but that does not excuse their actions.  He was right to tell that auditor he was "a slimy little man in a slimy little job".  Not a wise utterance but true.  I've met tax auditors and I cannot say I ever met one I respected or liked.  They are vicious and hate the public.

Anyway, my only main fear is if I died before things were in good enough order.  Getting there.  I don't think my music friends realize how it is sometimes very tricky getting to, and through, gigs sometimes.  Overall, I have improved over the past year, but once in awhile I get caught off guard and feel less than well.

I don't even read the MPN updates all the time.  Even though that is my best source of info re treatments, what others experience, doctors  of note, etc.  Great resource, but I can only indulge so much.  It is the complete life of several patients; researching and being involved with all that the condition entails.  Even running around the town to make money for MPN research, whatever it is called.  

I think maybe the MPN non profits are too new and too tied in with patients to be the big scam that most things like Cancer Society and other medical charities are.   They are out of business if major breakthroughs or cures come to fruition.

Fatigue and nausea can be very sneaky.  You cannot rest your way out of fatigue.  Movement, and exercise are the best things to reduce the feeling that your legs are rubber.   Very tough to just ignore the wobbly fatigue feeling and do what needs doing.   Not impossible.

I sometimes have energy.  It is probably the manic cycle.  It does help if I can get myself moving so that the mania kind of picks me up and counters the exhaustion.  

The fact that I am less plagued by the itching attacks and that mess, and am able to do more in some ways, indicates that maybe I am reducing this stuff to whatever its minimal condition is.
Babbling I guess.  Well, if I kick any time, this will be of some interest.  What is annoying is the shooting sensations that hit my legs or feet or arms and hands often at night.  Maybe it is what they mean by bone pain.  It is not like you can touch it and have any influence.  It is deeper or something.


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Ballistic Mountain, CA, United States
Like spring on a summer's day


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